deidentification

They asked respondents who they thought owned the samples involved in these projects, with 44% stating the institution, 26% the donor, and 23% the researcher. 58% preferred deidentification to anonymization, and 53% thought donors had a continuing right to make decisions regarding the use of their samples. 72% of Caulfield et al.’s respondents preferred that participants have the right to withdraw at any time.

Thus, there seem to be normal and pathological forms of sibling deidentification with important implications for those who work with troubled children.